Location

First Name

Last Name

Mobile Phone

Mailing Street

Mailing City

Mailing State/Province

Mailing Zip/Postal Code

Mailing Country

Individual Associated with BBS

Name of Individual Associated with BBS

Age of Individual Associated with BBS

BBS Gene

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Sex of Individual Associated with BBS

Major Medical Issues

Current Level of Vision

If 18+ are they Independent?

Please elaborate on the level of independence

Medical specialists the person sees regularly.

How big of an issue is appetite or weight management?

If the person is in school, what support do they have?

Robot Test (Required)

What is the 3 letter acroynm for Bardet Biedl Syndrome?