Get Involved

FUNDRAISERS

All proceeds support research for the Bardet-Biedl Syndrome. Please consider attending one of our fundraising events or making a donation today.

CONFERENCE

Our conference is a wonderful time to connect with and learn from other BBS families, hear from leading experts about cutting edge research on BBS, and ask questions of doctors and specialists who have experience treating lots of people with BBS.

Events

The proceeds from our events advance the mission and vision of the Bardet Biedl Syndrome Foundation.

Donate

Donations to the Bardet-Biedl Syndrome Foundation will support research into treatment and care for people affected by BBS as well as education and outreach to families, physicians, and educators. Our first major project is the launch of a clinical registry for BBS, a vital foundation for accelerating the pace of BBS research.