Rhythm Pharmaceuticals reported top-line results from its pivotal Phase III clinical trial evaluating setmelanotide for the treatment of insatiable hunger and severe obesity in individuals with Bardet-Biedl syndrome (BBS).
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A webinar with Eastern with Rhythm Pharmaceuticals to discuss the Phase II setmelanotide trial for weight loss in BBS.
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It's a weekend of good news, and probably bad news.
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Dr. Katsanis is the director of The Advanced Center for Translational and Genetic Medicine.
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Dr. Max Nachury is a leading researcher on BBS proteins.
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Literature describing Bardet-Biedl Syndrome (BBS) indicates that speech disorders are considered secondary diagnostic features of BBS.
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The first trial for a gene therapy treatment for a retinal degeneration was focused on a disease called Leber Congenital Amaurosis or LCA.
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Giving Tuesday, Amazon Smile and BBS Bracelets.
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The BBS Family Association has partnered with the Marshfield Clinic to apply for a grant to study weight management in people affected by BBS.
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CRIBBS, the BBS clinical registry is off to a flying start.
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We’ve launched a BBS Fund to support the new BBS Clinical Registry and BBS research and treatment.
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A huge breakthrough for developing gene therapies for syndromes like Bardet Biedl.
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An enterprising young woman who created a registry for the rare form of cancer that she suffered.
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Our mission: Improving the lives of all people affected by BBS.
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The Bardet Biedl Syndrome Foundation is now an officially incorporated non-profit in the State of Delaware.
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Over the last ten years research on the genetics of BBS has progressed by leaps and bounds.
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A new technology holds promise for rapidly accelerating progress on gene therapy.
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Family travels to the Marshfield Clinic for the first Bardet Biedl Syndrome (BBS) Center of Excellence.
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A letter to BBS families from Dr. Bob Haws, director of the BBS Center of Excellence at the Marshfield Clinic.
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Surprising things about protecting vision.
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