2025 Regional Gatherings

 
 

Interested in Getting Involved?

If you’re interested in volunteering or would like to learn more about how you can help bring a regional gathering to your area, please reach out to us by emailing molly.henry@bardetbiedl.org.

Together, we can make 2025 a year of connection, support, and community for everyone affected by Bardet Biedl Syndrome.

 
 

Coming soon…

We're excited to announce that planning is officially underway for the 2025 BBSF Regional Gatherings! These events are an incredible opportunity for families and individuals affected by Bardet Biedl Syndrome to come together, share experiences, and build lasting connections close to home.

Each gathering provides a more intimate setting to learn, support one another, and strengthen our local BBS community. With your help, we can bring these meaningful events to even more regions across the country.

We Need Volunteers!

We’re currently looking for passionate volunteers to help plan, organize, and lead these regional gatherings. Whether you have experience hosting events, love connecting with others, or simply want to support the BBS community in a new way—we’d love to have you on board!

Volunteer roles may include:

  • Helping to select and coordinate venues

  • Organizing local logistics (meals, lodging, transportation)

  • Leading or assisting with programming and group activities

  • Welcoming and supporting attendees