Our Impact to Support Research & Advocacy.

 
Great strides have been made toward improving the lives of families affected by Bardet Biedl Syndrome through information, support and by advancing research and therapy in the last decade. The syndrome is accurately and promptly diagnosed much more often; the genetics of the syndrome have been deeply explored; and progress is being made in understanding the molecular basis of symptoms and in possible treatment for retinal degeneration.
 
12+
Years
serving the BBS Community. We are proud to serve our community to make a daily impact on the lives of those affected by Bardet Biedl Syndrome.
 
$1.2m+
Raised
over the past ten years. The Bardet Biedl Syndrome Family Association has raised over $1,230,000 to further research into treatment and care for people affected by BBS as well as education and outreach to families, physicians and educators.
 
$750k+
Given
through grants to support Bardet Biedl Syndrome research since 2013.