We are going to be hosting a chalk-a-thon help raise awareness for BBS and to help find research to find treatments for people like Aiden!
When Aiden was born he had several issues that were immediately noticeable (like six fingers and six toes) and others that took longer to discover (like his declining eyesight). We knew that there had to be an overlying cause that tied all of his issues together but early on all the genetic tests came back without answers for us. When he was in primary school we finally got a test back with answers and that’s when we learned he has BBS.
On the first ever BBS Global Day, we are joining families around the world to take action to build awareness for BBS research and support!
Host Information: The Coble Family
We will do sidewalk all day on Saturday the 25th. Major donors (who are family or friends and live in the local region) can choose to have Aiden and team decorate their driveway or private sidewalk in honor of BBS. All donors names will be included in his main sidewalk art. Makeup days for donors after the 25th can be scheduled on subsequent weekend days.
